How to

Guides, standards and toolkits supporting service providers, policy makers and commissioners to develop and promote young people's participation.

  • Website Patient involvement in quality improvement: is it time we let children, young people and families take the lead? (Journal article)

    This article is part of the series on quality improvement in child health. It acts as a guide for health professionals to help involve children, young people and families in the design and provision of services.

    Publisher: Archives of Disease in Childhood Education & Practice Edition
    Published Date: 11/11/2013

  • Website VIK legacy

    This document celebrates the legacy of the YoungMinds Very Important Kids (VIK) project. The overarching purpose of VIK was to improve mental health services for children and young people, promote emotional wellbeing and challenge stigma. This was all to be done through encouraging meaningful children and young people’s participation.

    Publisher: YoungMinds
    Published Date: 29/08/2013

  • Website Bella and Anna talk about delivering CAMHS training and improving teacher attitudes

    In this short video, two members of the Cheshire and Wirral CAMHS Partnership participation group talk about their involvement in training mental health staff (Priority 4) and raising awareness of young people’s mental health needs among teachers.

    Publisher: MYAPT
    Published Date: 11/08/2013

  • Website Creating a children and young people friendly local Healthwatch: a first steps toolkit and resources guide

    This toolkit is designed to support local Healthwatches understand the core issues in engaging children and young people. It aims to help you build the knowledge and confidence to work successfully with children and young people.

    Publisher: Healthwatch England
    Published Date: 29/05/2013

  • Website Health information, health structures and patient involvement: what we think

    Over the past three years NCB has run a series of health consultations with 79 children and young people from around England. The NCB have summarised the recommendations from the five events into a clear and concise document containing the young people's views and the implications for the health structures involved.

    Publisher: National Children's Bureau (NCB)
    Published Date: 28/08/2012

  • Website A Practical Guide to Using Service User Feedback & Outcome Tools to Inform Clinical Practice in Child & Adolescent Mental Health

    Some initial guidance from the Children and Young Peoples’ Improving Access to Psychological Therapies Outcomes-Oriented Practice (CO-OP) Group

    Publisher: IAPT
    Published Date: 18/02/2012

  • Website Involving children and young people in health services

    This challenging new report makes recommendations to ensure the views and experiences of children and young people are at the heart of NHS reforms. It accompanies the publication Children and young people’s health: where next? and is produced by the RCPCH, NHS Confederation supported by the Office of Public Management (OPM).

    Publisher: NHS Confederation
    Published Date: 20/12/2011

  • Website Communicating and engaging with young people

    A new guide to help employers improve their team's communication and engagement skills with children and young people

    Publisher: Children’s Workforce Development Council (CWDC)
    Published Date: 20/10/2011

  • Website Involve Me

    The Involve Me resource aims to increase the involvement of people with profound and multiple learning disabilities (PMLD) in decision making and consultation. Involve Me: a practical guide has been launched along with an independent evaluation of the project. The guide refers to real-life examples as well as video clips, downloadable resources and the Involve Me film, which are available on an interactive DVD. The content shows how staff at four sites used different creative approaches to involvement. The guide also demonstrates how everyone, including staff, families and policy-makers, can start involving people with PMLD in decision-making and consultation.

    Publisher: Mencap
    Published Date: 23/09/2011

  • Website Enjoy, achieve and be healthy: the mental health of black and minority ethnic children and young people

    This report is based on a policy overview and consultation with 11-25-year-olds. It highlights the emergence of BME children receiving insufficient and ineffective consideration due to their age and ethnicity.

    Publisher: The Afiya Trust
    Published Date: 07/07/2011

  • Adobe Acrobat Document How many times do we have to tell you? A briefing from the National Advisory Council about what young people think about mental health and mental health services

    This briefing is based on the work of the National Advisory Council' (NAC) Young People's Reference Group, and on a short literature review, which looked at papers and reports involving consultations with children and young people. The reports were all published within the last ten years and look at what young people think about mental health, mental health services, the professionals who help them and other issues such as stigma.

    Publisher: National Advisory Council (NAC)
    Published Date: 30/06/2011

  • Website You’re Welcome: quality criteria for young people friendly health services

    Sets out principles to help commissioners and service providers to improve the suitability of NHS and non-NHS health services for young people. The guidelines can reinforce young people’s social responsibility as life-long users of the NHS and encourage them to share in the decisions made about their health.

    Publisher: Department of Health (DH)
    Published Date: 19/05/2011

  • Website Self-review tool for quality criteria for young people friendly health services (2011 edition)

    An updated self-review tool for the DH You're Welcome quality criteria for young people friendly health services. The quality criteria provide good practice guidance that is based on local practice and evidence of what will improve patient experience and health outcomes for young people. Use of the quality criteria also helps to encourage young people to share in decisions about their health and to increase effective use of NHS and public health services.

    Publisher: Department of Health (DH)
    Published Date: 19/05/2011

  • Website Guidelines for research with children and young people

    Guidelines for researchers who are contemplating involving children and young people in their research project as participants or in a more active role.

    Publisher: Participation Works
    Published Date: 06/04/2011

  • Adobe Acrobat Document A comparison of the CAMHS quality standards for children and young people’s participation and the You’re Welcome quality criteria self assessment toolkit

    A comparison of the NCSS/HASCAS quality standards and the You're Welcome quality criteria self assessment toolkit. Clarifies the relationship between the two documents and sets out a rationale for their use. Note: The You're Welcome quality criteria self assessment toolkit was updated and relaunched in May 2011 as the Self-review tool for quality criteria for young people friendly health services - available at /resource/item.aspx&RID=108468

    Publisher: Government Office for East of England
    Published Date: 02/02/2011

  • Website Puzzled Out

    Puzzledout.com is an online participation tool for commissioners and young people. It helps young people influence how child and adolescent mental health services (CAMHS) are commissioned and provided. Services, commissioners and young people’s participation groups can create online surveys and polls to gather the views of ex, current and potential service users. It will help you implement the service user engagement elements of the mental health strategy and other NHS reforms.

    Publisher: Cernis
    Published Date: 27/01/2011

  • Website Quality Network for Community CAMHS (QNCC): service standards

    Service standards which have been developed in consultation with professionals, young people, parents and carers, follow a care pathway and cover aspects of policy.

    Publisher: Royal College of Psychiatrists
    Published Date: 26/01/2011

  • Website No decision about me without me (participatory video)

    Developing the participation of children and young people in the services they receive from CAMHS providers is no longer an optional 'add on' for key professionals. It is a key facet in the delivery of these services and a key component of government policies for the development of the NHS. This short film explores why young people believe their participation is important. Features examples of good practice and how this leads to improved outcomes for young people. This short video could be used in meetings and to encourage discussion with commissioners.

    Publisher: National CAMHS Support Service (NCSS)
    Published Date: 30/11/2010

  • Adobe Acrobat Document Empowering participation in CAMHS

    This presentation focus on how Surrey CAMHS have taken forward their participation work. This presentation was given at the NCSS conference “No Decision About Me Without Me” on the 28th October 2010.

    Publisher: Surrey CAMHS
    Published Date: 15/11/2010

  • Adobe Acrobat Document Commissioning emotional wellbeing and mental health services

    This presentation focuses on how emotional wellbeing and mental health services were commissioned in Cornwall. This presentation was given at the NCSS conference “No Decision About Me Without Me” on the 28th October 2010.

    Publisher: Cornwall and Isles of Scilly NHS
    Published Date: 15/11/2010

  • Microsoft Word Document Participation strategy template

    Template to help services develop a participation strategy.

    Publisher: National CAMHS Support Service (NCSS)
    Published Date: 10/11/2010

  • Website Children and young people’s involvement in formal meetings: A practical guide

    This guide aims to help those who want to more effectively include children and young people in their adult-led meetings.

    Publisher: Participation Works
    Published Date: 06/09/2010

  • Website Not just a phase: A guide to the participation of children and young people in health services

    Information to ensure the safe, meaningful and ethical participation of children and young people within the delivery of quality child health services. It is designed primarily for paediatricians, senior children's nurses and leaders of organisations which provide general and specialised health services for children and young people.

    Publisher: Royal College of Paediatrics and Child Health (RCPCH)
    Published Date: 15/05/2010

  • Website Aiming High for Young People: engaging through social media

    DCSF have created a set of materials to help communicate and collaborate with young people through social media and inspiring video content. This advice will help reach out to a youth audience by promoting activities and encouraging innovative ways of communicating.

    Publisher: Department for Children, Schools and Families (DCSF)
    Published Date: 26/02/2010

  • Website Exploring impact: public involvement in NHS, public health and social care research

    This study looks at the impact of public and patient involvement in research through an in-depth review of published literature. It draws together examples of how public involvement is conducted, and how it makes a difference. It also raises questions about the quality of evidence showing the impact of such involvement, revealing huge variations in how this is assessed and reported, highlighting difficulties in judging it or drawing general conclusions.

    Publisher: INVOLVE
    Published Date: 06/01/2010

  • Website Turning what young people say into what services do: Quality standards for children and young people's participation in CAMHS

    These quality standards published in 2009 follow on from a two year collaboration between Young Minds, NCSS and HASCAS. The project aimed to bring together what is known about what young people want from services, building upon previous work by the full range of statutory and voluntary agencies. Analysis of the CAMHS self assessment matrix showed that the biggest challenges facing both commissioners and providers are user involvement and engagement of BME groups. In addition many vulnerable young people do not choose to use specialist CAMHS because they feel it is not appropriate for their age/culture/interests. The project addresses specifically the needs of this group. Three publications comprise Quality Standards, an annotated bibliography and an interactive literature review.

    Publisher: Health and Social Care Advisory Service (HASCAS)
    Published Date: 09/04/2009

  • Adobe Acrobat Document Audit of participation across the North East region

    The aim of this document is to offer a brief overview of participation work happening across the North East Region. It highlights examples of relevant practice within child and adolescent mental health services (CAMHS) across the North East. It gathers young people’s views of participation within CAMHS.

    Publisher: National CAMHS Support Service (NCSS)
    Published Date: 01/04/2009

  • Adobe Acrobat Document The Junction: What services should be in place to support youngpeople aged 16 and 17 years with acute mental healthneeds in Lancashire?

    A review of inpatient services by young service users in Lancashire, assessed against national criteria and with recommendations for changes to ensure more appropriate services.

    Publisher: Lancashire Care NHS Foundation Trust
    Published Date: 28/03/2009

  • Website QNIC: A Quality Network for Inpatient Child and Adolescent Mental Health (CAMHS)

    QNIC aims to demonstrate and improve the quality of in-patient child and adolescent psychiatric in-patient care through a system of review against the QNIC service standards. This process follows a clinical audit cycle with self-review and peer-review.

    Publisher: Royal College of Psychiatrists (RCPsych)
    Published Date: 24/03/2009

  • Website Hear By Right: supporting organisations in putting young people's voice at the heart of service delivery

    Standards framework and practice examples for statutory and voluntary sector organisations to assess and improve their practice and policy on the active involvement of children and young people.

    Publisher: National Youth Agency
    Published Date: 30/01/2008

  • Website Medicines management: everybody's business. A guide for service users, carers and health and social care practitioners

    This booklet aims to empower service users and carers to ask relevant questions about medication and have their views taken into account, and to help health and social care practitioners improve their person-centred approach in the area of medicines management.

    Publisher: Department of Health (DH)
    Published Date: 09/01/2008

  • Website Listen up! person-centred approaches to help young people experiencing mental health and emotional problems

    Makes the case for fundamental change in the service model for young people. It calls on commissioners to designate a lead agency and person to co-ordinate the commissioning of services for young people.

    Publisher: Mental Health Foundation
    Published Date: 23/09/2007

  • Website You're Welcome quality criteria: making health services young people friendly

    The You’re Welcome programme has changed. Since 31 March 2011, You’re Welcome and the review process is locally led. However, you can find a downloadable version of the updated Department of Health quality criteria for young-people friendly health services self-review tool (which is referred to as ‘You’re Welcome’) at this link. The content reflects the revisions made to the quality criteria. DH would like to reassure local areas, commissioners and services that the previous Department of Health quality criteria for young people friendly health services, You’re Welcome’ are still relevant.

    Publisher: Department of Health (DH)
    Published Date: 01/04/2007


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