Transitions: Resources for parents and carers

In this section you will find a selection of links to resources and support sites for parents and carers of young people.

For all parents and carers

  • Website Children and young people with complex health needs: a one-stop booklet for families
    This booklet offers practical support to improve the lives of children and young people with complex health needs. It suggests ways in which your child can be supported to have fun, and gives details of what is available to make the home more comfortable and adapted to your child’s needs as they grow up. You’ll also find information on your rights and advice on how to start planning for changes and transitions in your child’s life.

    Publisher: Foundation for People with Learning Disabilities
    Published Date: 2014

  • Website Got a Teenager
    Parenting a teenager can be likened to a rollercoaster, with many ups and downs and highs and lows.

    Publisher: Family Lives
    Published Date: 2012

  • Website From child to adult: a guide to disability, transition and family finance
    This free booklet has sections for parents and carers and disabled young people, a step-by-step guide to better-off calculations and a list of useful publications, organisations and websites. It answers questions such as: How are family finances affected when a disabled child becomes an adult? When is it most advantageous for a young person to start claiming their own benefits? Can parents change working hours to fit with a disabled young person's new regime?

    Publisher: Working Families
    Published Date: 2011

  • Website Surviving Adolescence - a toolkit for parents
    The teenage years can be an emotional assault course for all concerned. A gulf can grow between parents and their children during adolescence. Why do so many of us find it so hard? It's a time of rapid physical development and deep emotional changes. These are exciting, but can also be confusing and uncomfortable for child and parent alike.

    Publisher: Royal College of Psychiatrists
    Published Date: 2007

  • Website Family Lives (formerly Parentline Plus)
    Family Lives (formerly Parentline Plus) is a national charity providing help and support in all aspects of family life. It is available 24 hours a day, seven days a week through its free Parentline. Whatever your family role or situation, Family Lives provides help and support.

    Publisher: FamilyLives
    Published Date: 2007

  • Website Adolescent Autonomy Checklists
    These checklists were developed by the Youth In Transition Project (1984-1987) at the University of Washington division of Adolescent Medicine. They are based on a model developed by the Children's Rehabilitation Center at the University of Virginia. Use these checklists as an ongoing measurement of the independent skills your child achieves.

    Publisher: University of Washington
    Published Date: 2007


For parents and carers of a child going through transition

  • Website Friendship Circle of Michigan
    Friendship Circle is a non-profit organization that provides programs and support to the families of individuals with special needs.

    Publisher: Friendship Circle
    Published Date: 2012

  • Website Contact a Family - Disabilities
    Are the only UK-wide charity providing advice, information and support to the parents of all disabled children.

    Publisher: Contact a Family
    Published Date: 2007


Condition specific transition advice for parents and carers

  • Website Inflammatory bowel disease: top resources for children, adolescents, and their families
    It is estimated that more than 1 million people in the United States have inflammatory bowel disease (IBD), and about 10% of them are children. This article focuses on high-quality resources on the web and mobile health technologies that provide youth and their families with information and support for living with the challenges and uncertainties of IBD.

    Publisher: Journal of Pediatric Health Care
    Published Date: 2012

  • Website Cystic Fibrosis Factsheets
    Provide information and advice about all aspects of Cystic Fibrosis

    Publisher: Cystic Fibrosis Trust
    Published Date: 2012

  • Website Transition in IBD
    Making a successful transition from paediatric to adult care is a very important stage for all young people diagnosed with Ulcerative Colitis or Crohn’s Disease.

    Publisher: NACC
    Published Date: 2012

  • Website TYLIA - Taking your Liver into Adulthood
    These are a series of leaflets aimed at teenagers to give you generic liver specific information on a whole range of issues

    Publisher: CLDF
    Published Date: 2012

  • Website Teenagers - Diabetes UK
    Sometimes it can be hard to relate to your teenager. You might be worried they won’t look after their diabetes as well as you do, which could make them unwell both in the short and long term. If your child has just been diagnosed, your worries could be different: you’ll both be learning about diabetes and you may feel guilty that you don’t know everything in order to help.

    Publisher: Diabetes UK
    Published Date: 2012

  • Website CAMHS Transition
    YoungMinds is campaigning to improve transitions care from child and adolescent mental health services to adult mental health services. We want to stop young people from getting lost in the system when they reach 16.

    Publisher: Young Minds
    Published Date: 2012

  • Website Parents' survival guide
    Parenting isn’t always easy. Although it’s often amazing and rewarding to watch your children grow, and to help them learn to be independent, it can also be really hard work.

    Publisher: Young Minds
    Published Date: 2012

  • Website Guide to Transition for 13-25 year olds with muscle disease
    This guide provides advice about services and entitlements and signposts where to go for further information and support.

    Publisher: Muscular Dystrophy Campaign
    Published Date: 2010

  • Website DREAM Team
    This site provides resources for young people with conditions like arthritis, their families and the health professionals who look after them.

    Publisher: DreamTeam
    Published Date: 2007


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