Transitions: Research programmes and projects

This section features some key projects and research into the area of transition which will report in the future you can also view a list of published research reports.

  • Website Care leaver strategy: one year on progress update
    The care leaver strategy set out the actions that government departments would take in order to improve the support care leavers receive during their transition to adulthood and independence. This one-year-on document reports on progress made and sets out how we intend to further improve support for care leavers.

    Publisher: Department for Education (DfE)
    Published Date: 2014

  • Website The Transition Readiness Assessment Questionnaire (TRAQ): its factor structure, reliability, and validity
    National consensus statements recommend that providers regularly assess the transition readiness skills of adolescent and young adults (AYA).

    Publisher: Academic Pediatrics
    Published Date: 2014

  • Website Effective process or dangerous precipice: qualitative comparative embedded case study with young people with epilepsy and their parents during transition from children’s to adult services
    This study looked at issues relating to how young people disengage during transition from children’s to adult epilepsy services.

    Publisher: BMC Pediatrics
    Published Date: 2013

  • Website Making a difference for young adult patients: research briefing
    This briefing presents key findings from a national study (the STEPP project) on health care transitions for young adults with significant, and potentially life-limiting, conditions. As well as providing a rare insight into the views and experiences of young adults themselves, it also reveals how small changes in practice, that do not cost anything, can make a real difference. The briefing is aimed at: adult health care teams with young adults on their caseload; palliative care teams; ward staff; senior hospital managers; commissioners; transition leads in paediatric and adult health care; and voluntary sector organisations, including condition-specific charities and hospices.

    Publisher: Together for Short Lives
    Published Date: 2013

  • Website Making a difference for young adult patients. Practice prompts: key messages from research
    This guide is an important product of the national study (the STEPP project) on health care transitions for young adults with significant, and potentially life-limiting, conditions. It is intended to relay the key results of the study and to provide simple advice on working with young adult patients. It will be particularly relevant for: clinical and non-clinical staff working in adult health care; specialist teams caring for young adults with complex and/or life-limiting conditions; ward staff; senior hospital managers; transition leads in paediatrics and adult health; commissioners; condition-specific charities.

    Publisher: Together for Short Lives
    Published Date: 2013

  • Website Transition web site
    Transition is a programme of research that aims to address the question: How can health services contribute most effectively to facilitating successful transition of young people with complex health needs from childhood to adulthood? Northumbria Healthcare NHS Foundation Trust and Newcastle University have developed a research programme to answer this question. The programme involves further NHS Trusts and the voluntary sector.

    Publisher: Newcastle University
    Published Date: 2013

  • Website Transition in diabetes: young people move on – we should too (journal article)
    Adolescence is a period of rapid biological, psychological and social development. These changes coincide with the move from paediatric to adult healthcare systems and reciprocally impact on successful self-management and healthcare behaviours.

    Publisher: Paediatrics and Child Health
    Published Date: 2013

  • Website Transition of health care from pediatric to adult care
    The purpose of this study was to provide a review article summarising current recommendations for transition planning and create a parent/patient education handout to facilitate understanding of the transition process.

    Publisher: Journal of Pediatric Nursing
    Published Date: 2013

  • Website Taking On and Taking Over: physically disabled young adults and their care and support arrangements
    This study focuses on physically disabled young adults and those with chronic, complex or degenerative health conditions (but without learning disabilities). It will identify what support is needed and provided for them to achieve their aspirations for choice and control over their support arrangements

    Publisher: Social Policy Research Unit (SPRU)
    Published Date: 2012

  • Website How can health services contribute most effectively to facilitating successful transition of young people with complex health needs from childhood to adulthood?
    Northumbria Healthcare NHS Foundation Trust and Newcastle University have developed a research programme to answer this question. The programme involves further NHS Trusts and the voluntary sector.

    Publisher: Northumbria Healthcare NHS Foundation Trust
    Published Date: 2012

  • Website Growing Up with Chronic Illness
    On these pages you will find information about the study, the study methodology (secondary analysis of qualitative data), who's involved and how you can get involved, links to relevant websites and resources, details of publications arising from the work and my contact details if you'd like to get in touch.

    Publisher: GUCI
    Published Date: 2010

  • Website The STEPP project: Supporting health transitions for young people with life-limiting conditions: researching positive practice
    The purpose of this project is to develop an evidence-based resource which will support the implementation and embedding of good practice for young people and young adults with life-limiting conditions within health services.

    Publisher: Social Policy Research Unit (SPRU)
    Published Date: 2010

  • Website Transition to adult services and adulthood for young people with autistic spectrum conditions
    This study will provide in-depth qualitative data on the support provided for young people with ASC and their families in five case study areas.

    Publisher: Social Policy Research Unit (SPRU)
    Published Date: 2009

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