Transitions: Reports

This page shows the latest 15 resources to be added to the Transitions reports section of the site. New resources are added as they are published.

You can also view the full list of transitions reports (this may take some time to load).

  • Website File on 4. Abandoned to their fate
    This radio programme investigates new figures that suggest many young care leavers are failing to cope - with large numbers ending up in custody, homeless, sexually exploited or pregnant.

    Publisher: BBC Radio 4
    Published Date: 2015

  • Website My life, my support, my choice: a narrative for person centred coordinated care and support for children and young people with complex lives
    This document describes some critical outcomes and success factors in the care and support of children and young people with complex lives, from their perspective and that of the people who are important to them. It sets out how good, coordinated – or integrated – support looks to children and young people. The document offers a clear set of outcomes that commissioners and service providers should be working to. It covers children and young people up to the age of 25 and takes account of the transition into adulthood.

    Publisher: National Voices and Think Local Act Personal (TLAP)
    Published Date: 2015

  • Website RCPCH: Making the gear change in transition: what needs to happen next?
    Transition to adult services is an ongoing challenge for all those working in healthcare. RCPCH’s Head of Health Policy looks at the latest research and explores what it means in practice.

    Publisher: Royal College of Paediatrics and Child Health (RCPCH)
    Published Date: 2014

  • Website The state of health and social care in England 2013/14
    This report gives the Care Quality Commission’s perspective on the state of health care and adult social care in England, including around the transition from children’s to adult services.

    Publisher: Care Quality Commission (CQC)
    Published Date: 2014

  • Website Evaluation of a multidimensional cystic fibrosis transition program: a quality improvement initiative (Journal article)
    This paper describes the evolution of a transition clinic for patients with cystic fibrosis into a multidimensional quality improvement transition initiative.

    Publisher: Journal of Pediatric Nursing
    Published Date: 2014

  • Website From the pond into the sea: children's transition to adult health services
    The findings from the CQC recent review show that young people with complex health needs do not always receive the necessary care and support when they move on to adult care services.

    Publisher: Care Quality Commission (CQC)
    Published Date: 2014

  • Website Children and young people with complex health needs: a one-stop booklet for families
    This booklet offers practical support to improve the lives of children and young people with complex health needs. It suggests ways in which your child can be supported to have fun, and gives details of what is available to make the home more comfortable and adapted to your child’s needs as they grow up. You’ll also find information on your rights and advice on how to start planning for changes and transitions in your child’s life.

    Publisher: Foundation for People with Learning Disabilities
    Published Date: 2014

  • Website Looking for an ordinary life: supporting children with complex health needs and/or dependent on medical technology (Need 2 Know summary briefing)
    This briefing summarises findings about some of the current issues affecting children and young people with complex health needs (who may also be using medical technology) and their families. It is based on a development project carried out by the Foundation for People with Learning Disabilities. Nearly 40 children and families across England took part in the project. Families described the difference that a suitable home, personal budgets (including the new personal health budgets) and person-centred approaches can make to their quality of life. They also discussed the support they need to achieve this.

    Publisher: Foundation for People with Learning Disabilities
    Published Date: 2014

  • Website Transition care: future directions in education, health policy, and outcomes research (Journal article)
    All youth must transition from pediatric to adult-centered medical care. This process is especially difficult for youth with special health care needs. Many youth do not receive the age-appropriate medical care they need and are at risk during this vulnerable time.

    Publisher: Academic Pediatrics
    Published Date: 2014

  • Website Experiences of physically disabled young adults seeking choice and control over managing their care and support
    The transition to adulthood demands a lot from any young person. For young adults with physical disabilities, including complex degenerative health conditions, there is the additional challenge of taking on greater responsibilities around managing care and support arrangements. This innovative study explores the issues and identifies user-endorsed good practice for this group of adult service users.

    Publisher: School for Social Care Research (SSCR)
    Published Date: 2014

  • Website Making a difference for young adult patients: research briefing
    This briefing presents key findings from a national study (the STEPP project) on health care transitions for young adults with significant, and potentially life-limiting, conditions. As well as providing a rare insight into the views and experiences of young adults themselves, it also reveals how small changes in practice, that do not cost anything, can make a real difference. The briefing is aimed at: adult health care teams with young adults on their caseload; palliative care teams; ward staff; senior hospital managers; commissioners; transition leads in paediatric and adult health care; and voluntary sector organisations, including condition-specific charities and hospices.

    Publisher: Together for Short Lives
    Published Date: 2013

  • Website Transition in diabetes: young people move on – we should too (journal article)
    Adolescence is a period of rapid biological, psychological and social development. These changes coincide with the move from paediatric to adult healthcare systems and reciprocally impact on successful self-management and healthcare behaviours.

    Publisher: Paediatrics and Child Health
    Published Date: 2013

  • Website Bridges and barriers to successful transitioning as perceived by adolescents and young adults with Asperger syndrome
    In this thematic content analysis, the authors examined the expectations, perceived facilitators of (referred to as bridges) and barriers to transition to community as reported by adolescents and young adults with Asperger syndrome.

    Publisher: Journal of Pediatric Nursing
    Published Date: 2013

  • Website Transition of health care from pediatric to adult care
    The purpose of this study was to provide a review article summarising current recommendations for transition planning and create a parent/patient education handout to facilitate understanding of the transition process.

    Publisher: Journal of Pediatric Nursing
    Published Date: 2013

  • Website Adolescents with physical disability: seeing the individual in context
    The author argues that adolescence is a time of profound developmental change and those with physical disabilities can face barriers to their development in a number of areas. While many of these may not affect their physical health directly, it is important for health professionals to take a holistic view and remember that, as with other areas of child development, opportunities lost at critical periods may have later consequences. She suggest that potential difficulties should be anticipated and discussed with young people, parents and other professionals in order to improve outcomes.

    Publisher: Archives of Disease in Childhood
    Published Date: 2013

  • Website Transition to adult services and adulthood for young people with autistic spectrum conditions: final report
    The study focused specifically on young people with autistic spectrum conditions (ASC) on the cusp of leaving school and in the early post-school/college years. This is a period of significant change, and for that reason, presents particular challenges for young people with ASC which are over and above the challenges of transition experienced by other groups of young people. There have been concerns that young people with a diagnosis of autism but with no learning difficulties (that is, those with 'high functioning autism' (HFA) or Asperger's syndrome (AS)) whilst not eligible for support from adult social care, do have significant support needs to enable them to successfully transition into adulthood.

    Publisher: Social Policy Research Unit, University of York
    Published Date: 2013

  • Website Transitioning the adolescent with type 1 diabetes mellitus
    Transition to adult-care services is an important milestone for all youth with chronic illnesses. When older adolescents with type 1 diabetes mellitus have reached an age when it is no longer appropriate to receive care from a pediatric team, the transition to adult-care services can be problematic and, in certain cases, may result in loss of medical follow-up.

    Publisher: Journal of Pediatric Nursing
    Published Date: 2012

  • Website Don't let me down: ensuring a good transition for young people with palliative care needs
    Medical advances make it possible for young people with life-limiting or life-threatening conditions to live longer. However, the point at which young people move from children’s to adult services – commonly referred to as 'transition' – represents a particular challenge. This report seeks to fill a gap by focusing on the part played by adult agencies in making transition work for young people needing palliative care and forms part of a larger project to improve young people’s experience of transition.

    Publisher: Marie Curie Cancer Care
    Published Date: 2012

  • Website Heidi's and Philip's stories: transitions to post-secondary education
    In this article, the formative childhood and adolescent experiences of two young adults with learning disabilities, leading to their transitions from high school to university, are chronicled. Their university studies, as auditing students, and the Campus Life programme through which their studies were supported, also are described. Finally, their recommendations to other young people with learning disabilities who aspire to higher education are detailed.

    Publisher: British Journal of Learning Disabilities, Special Issue: The research and work of learning disabled people with their allies and supporters
    Published Date: 2012

  • Website Learning independence: views of care leavers, students in residential further education and boarders in boarding schools on moving on to independent adult life
    This report gives the views of young people who are about to leave boarding schools for adult life, residential students in further education colleges and care leavers about learning and preparing for life as independent adults. It compares the views of those moving into independent adulthood from these very different backgrounds.

    Publisher: Ofsted, Office for Standards in Education, Children’s Services and Skills (Ofsted)
    Published Date: 2012

  • Website Longitudinal evaluation of transition services ('LETS Study'): protocol for outcome evaluation
    This paper describes a study protocol of a client-centreed, prospective, longitudinal, mixed-method evaluation of linked model of health care across the lifespan (the LIFEspan Model), offered by a paediatric rehabilitation centre and an adult rehabilitation centre.

    Publisher: BMC Pediatrics
    Published Date: 2012

  • Website Parental experiences transitioning their adolescent with epilepsy and cognitive impairments to adult health care
    The objective of this study was to explicate processes that parents of adolescents with epilepsy and cognitive impairments undergo as they help their adolescents transition to adult health care.

    Publisher: Journal of Pediatric Health Care
    Published Date: 2012

  • Website Diabetes care for emerging adults: Recommendations for transition from pediatric to adult diabetes care systems
    For emerging young adults with diabetes, it is particularly important to create effective and translatable processes for the transition in care from pediatric to adult providers in order to optimize well-being and health for the near term.

    Publisher: Diabetes Care
    Published Date: 2011

  • Website Just normal young people: supporting young people living with HIV in their transition to adulthood. A report from the Children and Young People HIV Network
    This report examines how young people living with HIV enter adulthood, and from child- to adult-focused services. The report: explores how children’s and adult health, social care and voluntary sector services work with young people; presents experiences, issues, challenges and achievements reported by young people, practitioners, and parents and carers; draws upon these findings to discuss how the needs of young people in transition can be met effectively, making recommendations for policy and practice. Just Normal Young People is part of a Children and Young People HIV Network project aiming to enable improved transition experiences for young people living with HIV. The Network brings together a wide range of organisations and practitioners concerned with children and young people who are living with and/or affected by HIV.

    Publisher: National Children's Bureau (NCB)
    Published Date: 2011

  • Website A social-ecological model of readiness for transition to adult-oriented care for adolescents and young adults with chronic health conditions
    The authors of this article suggest that policy and research related to transition to adult care for adolescents and young adults (AYAs) has focused primarily on patient age, disease skills and knowledge and in an effort to broaden conceptualization of transition and move beyond isolated patient variables, a new social-ecological model of AYA readiness for transition (SMART) was developed. SMART development was informed by related theories, literature, expert opinion and pilot data collection using a questionnaire developed to assess provider report of SMART components with 100 consecutive patients in a childhood cancer survivorship clinic.

    Publisher: Child: Care, Health and Development
    Published Date: 2011

  • Website Transition to adult services
    This article discusses current progress towards improving training in young people's health in the UK, the evidence base for transitional care in young people with chronic conditions with interventions that focus on staffing, service delivery and young people, a practice based approach for transitional care in young people with learning difficulties and complex needs, the need for monitoring and evaluation of transitional care, and the challenge of funding.

    Publisher: Archives of disease in childhood education and practice
    Published Date: 2011

  • Website Growing up: issues facing young adults today (video)
    Kevin Lowe, Co Director of Young People in Focus, speaks at the Transition to Adulthood (T2A) National Conference. He discusses how the transition to adulthood has changed.

    Publisher: Young People in Focus (YPF)
    Published Date: 2011

  • Microsoft Powerpoint Presentation Transition: moving between child and adult continuing healthcare (presentation)
    Presentation at the event "Continuing Care for Children" jointly organised by NHS Yorkshire and the Humber and the Department of Health and held in Leeds on 13 April 2011.

    Publisher: Department of Health (DH)
    Published Date: 2011

  • Website Enough of the problem: A review of time for health care transition solutions for young adults with a chronic illness
    In this article, the authors critically assess the state of the science of transition care in chronic conditions using diabetes care as an exemplar and provide a case for the adoption of the principles of the Chronic Care Model in driving health care reform.

    Publisher: Journal of Clinical Nursing
    Published Date: 2010

  • Website How do we organize smooth, effective transfer from paediatric to adult diabetes care?
    Transition from paediatric to adult care is a major milestone in the life of a young person with diabetes, yet it is commonly poorly done. This finding is supported by the dearth of publications in the literature that particularly relate to transition in diabetes care.

    Publisher: Hormone Research
    Published Date: 2002

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